People with Parkinson’s & Caregivers Support Groups
When most people receive the diagnosis “You have beginning stages of Parkinson’s…,” reactions can be denial, fear, feelings of hopelessness and helplessness, and “What do I do now?”
Doctors, as competent and wonderful as they may be, are trained to inform patients from the clinical perspective. While that is necessary in order to begin this unexpected (and unwelcome!) change in one’s life, what is really needed now that the newly-diagnosed person with Parkinson’s has been medically informed is:
1. Education about the future with Parkinson’s disease, and
2. A plan for living well with it.
The place to begin is getting information, doing personal research, sharing the news with family and close friends, and finding support and a “road map” for this new journey. Support groups are composed of other people who are going down the same road and have an understanding that no one else could really have. They offer helpful advice, suggestions and ideas for coping with difficult situations – because they have experienced many of the same things. However, the most significant thing the support groups can provide is a safe place where difficult discussions can take place in confidence and where understanding, acceptance and encouragement are present, always available and only a phone call or text message away.
4th Saturday Support Groups for People with Parkinson’s Disease and their Family, Caregivers, and Friends
The Parkinson’s Outreach Alliance provides activities, unique exercise programs, educational seminars, and helpful and educational literature that answer questions including: “What is Parkinson’s, why do I have it, what do I do now, what are treatments, what is the prognosis, what doctors do I need, etc.?” The meetings are currently taking place via Zoom, but we hope to move to in-person groups at some point for both caregivers and people living with Parkinson’s disease.
Contact us at (850) 364-0230 or email@example.com for more information.
2nd Thursday Support Group Meeting (Health and Wellness)
The 2nd Thursday Support Group, sponsored by Tallahassee Memorial HealthCare, invites speakers from various professions to present the latest information on Parkinson’s-specific areas of interest, as well as topics of significant importance to our Parkinson’s constituency. The group meets at the Parkinson’s Outreach Association’s office in Tallahassee on the second Thursday of each month from 4:30 p.m. – 5:30 p.m. For more information on the TMH Parkinson’s Support Group, please call 850-431-5002.